Wednesday, March 9, 2016

The Past Few Days............

Tuesday we met with the speech therapist.  Tom was nervous and didn't want them to think he was stupid. I knew they wouldn't but it's understandable to be a little insecure.   We made sure to tell her how many degrees he had and that he can read 1500 words a minute!  They did their assessment and was blown away with how well he is doing!  Two weeks out of brain surgery and he was almost in the normal levels of brain functions.  Seriously - prayers work people!  She said they would get him back to his MBA level for sure!  Tom even joked today!  That was a miracle all in it's self! (he's been very literal)

Sunday we went to church for the first time in a month.  Tom got up and shared his testimony of prayer, faith and his gratitude for all the love and service we have received this month.  We are blessed beyond belief!  We could not have done this on our own.  We know that our Father in Heaven has sent his angles to help us through this trial.  Those angles comes in the forms of friends bringing dinner, family stopping in, laundry being done, animals being fed, flowers being watered, the lawn being mowed, soda's brought over, treats, magazines to read and prayers - a lot of prayers from every religion! 

Last week was hard but every day got better.  I am not perfect and do lose my patience.  Tom is so sweet and loving which makes my impatience seem even worse.  Friday Pam and Chelsa called Tom's friend Deland and set up a whole day off for the girls and I.  They had a different friend come stay with Tom every hour on the hour from 8am-5pm.  I think it not only lifted Toms spirits but it also lifted mine.  I was able to spend one on one time with Cassidy (Amberly was gone all day at birthday parties) and we got a lot done!  Another tender mercy for our family.  A huge thank you to Pam, Chelsa and Deland  and to all the men who came over during their busy Saturday to hang with Tom!

Friday, February 26, 2016

The Diagnosis

We had to wait over a week for the final diagnosis.  Our surgeon, Dr. Nader Sanai is the head of the tumor board and Director of  the Barrow Brain Tumor and research center.  We new it was a level two (which is good) and we knew it was a slow growing tumor (which is also good) but we didn't know if it was cancer or not.  We met with the Neuro Oncologist and finally got the information to proceed with treatment:

The tumor was a low grade level 2.
It is a Glioma called Astrocytoma.
It can be and is a form of cancer.
It comes from the brain and a gene mutation.  It is not hereditary, it didn't come from something he ate, drank (diet soda) or was exposed to, and it isn't from his cell phone.
It was a slow growing tumor.

They will be doing genetic profiling on Tom and the tumor for the future in case anything else comes up they will already have a full genetic profile ready to go. 

The first treatment - Surgery - Removed 95% of the tumor.
The second treatment - radiation - 5 days a week for 6 weeks
The third treatment - Chemo - a pill taken at home 7 days a week for 6 weeks.
(Both these will be done at the same time)

The doctors are very hopeful these treatments will get rid of the tumor permanently.  They said this is the best type of tumor to get if you were to get a brain tumor.  Tom is healthy, doesn't drink, smoke or even drink caffeine.  He has no other health issues and his brain is very smart from all that schooling so it will be easy to retrain the brain to his normal old self.  Tom is excited because he says he will be even smarter than before since that softball in his noggin isn't slowing him down. 

Tom will be very busy over the next 6 weeks with speech therapy, neuro rehab, radiation and chemo.  I'm telling him it's like a mini makeover on his brain.  Six weeks of hard stuff then a lifetime of greatness!

His scar is amazing and healing up so fast! 
They only shaved his head where they cut!